Legal, Ethical, and Scientific Challenges in International Biobanking
Edited by Timo Minssen, Janne R Herrmann and Jens Schovsbo
Chapter 5: Biobanking, scientific productions and human rights
This chapter aims to provide a brief survey on three distinct sets of issues, all related to biobanks. The first set concerns the human rights involved in the collection, processing, use, or storage of the biological materials collected by biobanks. The second set pertains to the human rights issues implicated by the development of scientific productions utilizing the collected materials. The third set relates to the human rights obligations of three types of biobanks: public biobanks, private biobanks and biobanks formed out of public-private partnerships (PPPs).The goal of this chapter is not to provide detailed analyses of these three sets of human rights issues. Instead, it aims to offer preliminary sketches of the various human rights issues that can be implicated by biobanks. It is my hope that this chapter will highlight the complexities concerning human rights issues in the area of biobanking and thereby generate greater interest and attention from the medical community, biobank operators and funders, policymakers, regulators, commentators, and the mass media.
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